Parents of Adults with Intellectual Disabilities Towards Circles of Support as a Model of Community Service to Support Social Inclusion - a Focus Group Research Report

Agnieszka Beata Żyta

Abstract


Introduction: Circles of Support are an example of activities that support the social inclusion of people with intellectual disabilities and their “secure future” in the local environment. An important element influencing their success is, among other things, to know the expectations and activities of parents of adults with intellectual disabilities related to the preparation of their daughters and sons for an independent life in an inclusive local environment.

Research Aim: The aim of the study was to find out how parents of adults with intellectual disabilities evaluate activities that prepare them for a “secure future” and what expectations they have of Circles of Support as solutions to support independent living in the local environment.

Method: An interpretative phenomenological analysis was used to explore the opinions, plans for the future, and hopes and fears about participation in Circles of Support expressed by mothers and fathers. The study was conducted using focus interviews with eighteen parents of adults with intellectual disabilities.

Results: Analysis of the material identified three overarching themes. The overarching themes included: (1) the importance of Circles of Support for people with intellectual disabilities and their families, (2) concerns and hopes related to Circles of Support and (3) needs and ideas related to developing the idea of Circles of Support.

Conclusion: The results can be used by professionals working in institutions supporting people with intellectual disabilities to improve cooperation with their families, to better respond to their needs, and develop the idea of building Circles of Support.


Keywords


parents, adults with intellectual disabilities, Circles of Support, “secure futures”, social inclusion, focus research

Full Text:

PDF (Język Polski)

References


Araten-Bergman, T. , Bigby, Ch. (2022). Forming and supporting circles of support for people with intellectual disabilities – a comparative case analysis. Journal of Intellectual & Developmental Disability, 47 (2), 177-189. https://doi.org/10.3109/13668250.2021.1961049

Barbour, R. (2011). Badania fokusowe. PWN.

Bigby, C., Araten-Bergman, T. (2018). Models for forming and supporting circles of support for people with intellectual disabilities. Living with Disability Research Centre, La Trobe University.

Etmanski, A., Collins, J., Cammack, V. (2019). Bezpieczeństwo i ochrona. Sześć kroków do udanego życia osób z niepełnosprawnością intelektualną. Materiały projektowe. FIO.

Husserl, E. (1989). Nastawienie nauk przyrodniczych i humanistycznych. Naturalizm, dualizm i psychologia psychofizyczna. W: Z. Krasnodębski (Red.), Fenomenologia i socjologia (s. 53-74). PWN.

Krause, A., Żyta, A., Nosarzewska, S. (2010). Normalizacja środowiska społecznego osób z niepełnosprawnością intelektualną, Wydawnictwo Akapit.

Lee, C. E., Burke, M. M. (2020). Future planning among families of individuals with intellectual and developmental disabilities : A systematic review. Journal of Policy and Practice in Intellectual Disabilities, 17 (2), 94-107. https://doi.org/10.1111/jppi.12324

Lockman Turner, E., Bubash, S., Fialka-Feldman, M., Hayes, A. (2022). Circles of Support and Self-Direction: An Interview Highlighting a Journey of Friendship and Managing Services. Inclusive Practices, 1 (2), 75-78. https://doi.org/10.1177/27324745221074408

Louw, J. S., Kirkpatrick, B., & Leader, G. (2020). Enhancing social inclusion of young adults with intellectual disabilities: A systematic review of original empirical studies. Journal of Applied Research in Intellectual Disabilities, 33(5), 793– 807. https://doi.org/10.1111/jar.12678.

Macadam, A., Savitch, N. (2015). Staying connected with circles of support. Journal of Dementia Care, 23(1), 32–34.

Morgan, D., L. (1996). Focus Groups. Annual Review of Sociology, 22, s. 129-152.

Neubauer, B. E., Witkop, C. T., Varpio, L. (2019). How phenomenology can help learn from the experiences of others. Perspectives on Medical Education, 8(2), s. 90-97. https://doi.org/10.1007/s40037-019-0509-2

Nowe Kręgi. Kręgi Wsparcia – Przyszłość zaczyna się dziś. Pobrane 21, Sierpnia, 2022 z: https://kregiwsparcia.pl/upowszechnianie-nowekregi

O projekcie. Bezpieczna przyszłość osób z niepełnosprawnością intelektualną – testowanie modelu. Pobrane 21, Sierpnia, 2022 z: https://kregiwsparcia.pl/o-projekcie

Ostrowska, A. (2015). Niepełnosprawni w społeczeństwie 1993-2013. Wyd. IFiS PAN.

Ostrowska, A. (2016). Integracja osób niepełnosprawnych. Wymiar instytucjonalny i interakcyjny. W: M. Anasz, J. Wojtyńska, H. Drachal (Red.), Rehabilitacja – Wsparcie – Inkluzja. W kierunku polityki wobec niepełnosprawności (s. 227-232). Polskie Forum Niepełnosprawnych.

Pietkiewicz, I., Smith, J.A. (2012). Praktyczny przewodnik interpretacyjnej analizy fenomenologicznej w badaniach jakościowych w psychologii. Czasopismo Psychologiczne, 18(2), 361‒369.

Rapley, T. (2010). Analiza konwersacji dyskursu i dokumentów, PWN.

Taggart, L., Truesdale-Kennedy, M., Ryan, A., McConkey, R. (2012). Examining the support needs of ageing family carers in developing future plans for a relative with an intellectual disability. Journal of Intellectual Disabilities. 16 (3), s. 217-234. https://doi.org/10.1177/1744629512456465.

Wistow, G., Perkins, M., Knapp, M., Bauer, A., Bonin, E.-M. (2016). Circles of support and personalisation: exploring the economic case. Journal of Intellectual Disabilities. 20 (2), s. 194-207. https://doi.org/ 10.1177/1744629516637997

Żyta, A. (2020). Inkluzja społeczna dorosłych z niepełnosprawnością intelektualną a samostanowienie – Kręgi Wsparcia jako propozycja działań. W: Z. Janiszewska-Nieścioruk (Red.), Problematyczność inkluzji społecznej i edukacyjnej osób z niepełnosprawnościami i o szczególnych potrzebach (s. 113-121). Oficyna Wydawnicza Uniwersytetu Zielonogórskiego.




DOI: http://dx.doi.org/10.17951/lrp.2022.41.3.129-146
Date of publication: 2022-12-07 21:19:04
Date of submission: 2022-08-21 23:55:45


Statistics


Total abstract view - 863
Downloads (from 2020-06-17) - PDF (Język Polski) - 483

Indicators





Copyright (c) 2022 Agnieszka Beata Żyta

Creative Commons License
This work is licensed under a Creative Commons Attribution 4.0 International License.